Friday, October 12, 2007

Silas Update!

So, many of you have been praying for Silas and the big decisions we need to make regarding his upcoming surgery. We wanted to let everyone know about what's been going on lately. Oh, and we'll try really hard not to use big, confusing medical phrases... Here Goes!

Last month we met with a Pediatric Neurosurgeon to follow up on some preemie issues. We thought nothing of it, considering we had been to a whole series of different specialists and Silas was clearing hurdle after hurdle. Needless to say we ere floored when the Doctor said that a couple of the bones in his head had fused together, leaving no room for the brain to grow appropriately. He said we had one of two options...
1. He would cut two small incisions into the top of Sy's head and remove the closed bone. Then Silas would be fitted for a series of reshaping helmets that he would wear for between three and five months of time. This would ensure that when the bone regrew, it would form correctly.
2. He would open Sy's head from ear to ear, take out the bones in his head, reshape them and then put the bones back in.

Each have their risks and benefits and we were completely unsure of which to choose. So, we decided to get a second opinion today at the Golisano Children's Hospital in Rochester to see which of the two surgeries this new doctor recommended.

We were shocked once again when this doctor came in and said that he did not believe that the bone in Sy's head was closed. He thinks that we are dealing with a whole separate set of issues. He believes that another couple of bones are fused in a different section of his head, that his brain is under pressure causing a thinning of the bone, and that the only option is to perform a craniotomy. This would mean opening his head from ear to ear and removing the entire top and back of his skull. This would hopefully regrow within a couple of months.

Hmmm....we have no idea now. But we will meet with the first doctor again on Monday and know that God will make it clear to us which is the best option for our little guy. Our decision needs to be made soon, as the surgery has to take place within the next two weeks. Please keep praying for wisdom as we seek His will. We really appreciate it!! We'll keep you all up to date as soon as we know something for sure!

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